Here we go again.

[DesertRat]

Well, folks. Sherri is going through another spell. I may be noticable absent again for a while as we start another round of testing. There is even talk of a road trip out to Mayo this time. (Is that in Minn?)

Latest needle in a haystack they want to identify or discredit is something called "CNS vasculitis." As with all the others, it can take forever to positively diagnose.

The neurologist says it is definately some form of neurological disorder, it's just a matter of figuring out which one. They have pretty much discounted MS, but, "that doesn't mean it's not that." Geez, this stuff is a mess. They still also believe there is the underlying Addison's.

One top of all this, one of the three surgeries from last year did not last and will have to be repeated in November except they are going to lay her open instead of scoping it this time. The fun never ends. :rolleyes:

It's going to be a busy time so if I dissapear again you'll know what's going on. I'll be back eventually or might not hide at all this time. Just giving a head's up in case I decide to crawl in a hole again.

[klar]

I will send a pray out for you and sherri Desert. We all here hope you the best in everything and hope that you keep coming back from time to time to let us know how everything is going. Hang in there and hope for the best is the best advice I can give ya.

Klar

[Mitzi]

I'm so sorry, DR. THe Mayo is in Rochester, Minnesota, Phoenix, Arizona and Jacksonvile, Florida. The Mayo is the one that found our son's brain tumor and I have great faith in them.

[DesertRat]

</font><blockquote><font size="1" face="Verdana, Arial">quote:</font><hr /><font size="2" face="Verdana, Arial">Originally posted by Mitzi:
<strong>I'm so sorry, DR. THe Mayo is in Rochester, Minnesota, Phoenix, Arizona and Jacksonvile, Florida. The Mayo is the one that found our son's brain tumor and I have great faith in them.</strong></font><hr /></blockquote><font size="2" face="Verdana, Arial">What they told us was it was kind of silly to keep spending all our time and money going to the cardiaologist, rumatologist, neurologist, endroconologist, and a half dozen other ists, that can't seem to put a finger on this. Though, I think this new neurologist she has found is the sharpest doctor I've ever met. She is a research director into neurological and vascular (the bleeds Sherri gets in her eyes) disorders at the University here. I think if anybody local can nail it it will be this woman. It also didn't hurt that Sherri finally had a mild episode while in her office.

I guess at Mayo they all huddle together in the same room and work on you all at once. They are going to do another one of those test where they shoot the dye into her brain and take x-rays. If that is inconclusive the biopsy the brain. <img border="0" title="" alt="[Eek!]" src="eek.gif" /> I didn't even know they could do such a thing. If that is inconclusive, I think they will ship her off.

One day at a time.

[Mitzi]

Our son was realy gone through with a fine tooth comb. They even did a psychoneurological test on him, telling us if his condition has worsened (it has) and how it's affecting him (He gets very depressed). His neurologist is brilliant. I think, if the neurosurgeons had just listened to him, they could have removed the seizure activity. But, while they were in the operating room, the neuorsurgeons in Minnesota and Rochester agreed with the Jacksonville neurosurgeon that it was just too risky. It was a bitter, bitter disappointment but I still believe in the Mayo and always will.

<small>[ 09-12-2002, 08:32 PM: Message edited by: Mitzi ]</small>

[Piper]

DR, My thoughts and prayers are with you and Sherri. Please take care.

[shorty]

My thoughts and prayers are with you and your family. Don't give up hope, one of these doctors will find out what's wrong when you least expect it. Remember, the Lord will not put more on you than you can take! Give Sherri my best wishes for a speedy recovery and remember your buddies at O.com will be thinking about you!

[wonderwoman]

As has already been said, my thoughts and prayers are with you and your wife. Remember to also take care of yourself during this time.

[Mitzi]

With a sick wife, six kids and being a motorcycle police officer, you have to watch your stress level. Twice now, I have almost ended up in the hospital because I was not gettig my rest, eating right and sleep seemed non-existant.
I worried myself so sick over my son, I got sick. So, remember to get your sleep, arrange help with the kids and rest when you can.

[kateykakes]

DR,

Never give up faith. Never give up hope. My thoughts and prayers are with you and your family.

[SGT Dave]

Good luck buddy.

[Don]

DR, you already know my feelings. If there is anything I can do, give me a call, email or PM.

[Blonde Heat]

Prayers are with you and Sherri. I do know the Mayo Clinic in Phoenix is awesome. Hope all well works out for you.

[DesertRat]

Thanks everyone! Nothing new to report. Going through the prelimary blood screens (for the 10-11th time) and waiting for the insurance to authorize an angiogram. If that is inconclusive they are going to biopsy the brain. Hoping they are wrong again. Certainly wouldn't be the first time. :rolleyes:

Vasculitous makes sense though. She has already been diagnosed with it in her left eye. When we had the liver cancer scare prior to her surgery last year, they concluded what they thought was a lesion, actually appeared to be "a group of damaged blood vessels" (vasculitous) that they assumed at the time she was probably born with. Obviously, we want to go take a look at that again now too and make sure there is still no change in that.

I'm still clinging to the hope this is all some sort of chemical imbalance and they are going to find the wonder pill she needs any day now. Time will tell.

[OfcMikey]

My best wishes to you and yours. You will be in my prayers.

[Mitzi]

I recently heard from my sons neurosurgeon. He knows I take my son's brain surgeries very hard but he is a quiet man and never says too much. THe last surgery last February almost did me in and I think he knew that. As many of you know, when you have a sick loved one, the stress is unbelievable and you just wish it were you instead of them.
I received an e-mail from the neurosurgeon saying, "Never give up hope". I was so surprised because we rarely have any dealings with him, just the neurologist. It meant more to me then I can say. So, DR, never give up hope. I pray for Sherri everyday. She's so young and I know it's hard, not just to be sick, but to be the wife and mommy she wants to be. I know God in her wisdom will give normalcy back to her someday.